EURODIS - Rare Diseases Europe
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 860 rare disease patient organisations in 70 countries.
We are the voice of 30 million people affected by r...
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Resource added in:
17/05/2019
Available languages:
English
Rare Diseases, Drugs from the Specialized Component of Pharmaceutical Care
FAPESP e Belmont Forum anunciam nova chamada para propostas de soluções inovadoras sobre mudanças climáticas
Busca reunir pesquisadores e outros especialistas em todo o mundo para propor estratégias concretas, ações inovadoras ou soluções que contribuam para a resiliência do sistema de saúde ao clima ...
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Resource added in:
17/05/2019
Available languages:
Portuguese
Health Sciences, Technology, and Innovation Management
Celiac Disease Foundation
Medical information provided on this site has been prepared by medical professionals and reviewed by the Celiac Disease Foundation’s Medical Advisory Board for accuracy. Information contained on thi...
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Resource added in:
17/05/2019
Available languages:
English
Celiac Disease, Diet, Gluten-Free, Food Hypersensitivity, Food Intolerance
Muscular Dystrophy Association
Website dedicated to transform the lives of people living with muscular dystrophy, ALS and related neuromuscular diseases.
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Resource added in:
17/05/2019
Available languages:
English
Amyotrophic Lateral Sclerosis, Muscular Dystrophies, Neuromuscular Diseases, Rare Diseases
SMA Foundation - Spinal Muscular Atrophy Foundation
The mission of the SMA Foundation is to accelerate the development of a treatment for Spinal Muscular Atrophy. SMA is the leading genetic cause of death in young children.
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Resource added in:
17/05/2019
Available languages:
English
Spinal Muscular Atrophies of Childhood, Muscular Atrophy, Spinal, Rare Diseases
Cure SMA
SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the numb...
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Resource added in:
17/05/2019
Available languages:
English
Muscular Atrophy, Spinal, Spinal Muscular Atrophies of Childhood, Rare Diseases
Protocolo Clínico e Diretrizes Terapêuticas para Profilaxia Pré-Exposição (PrEP) de Risco à Infecção pelo HIV
Este documento tem o objetivo de instituir o Protocolo Clínico e Diretrizes Terapêuticas para Profilaxia Pré-Exposição (PrEP) de risco à infecção pelo HIV.
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Resource added in:
16/05/2019
Available languages:
Portuguese
Clinical Protocols, HIV, Pre-Exposure Prophylaxis
Saiba qual é a quantidade ideal de pasta de dente para bebês
Com a chegada de um bebê na família tudo é uma novidade, principalmente quando se nasce os dentes.
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Resource added in:
16/05/2019
Available languages:
Portuguese
Oral Health, Child Health, Pediatric Dentistry
Doença Celíaca
Normalmente se manifesta em crianças com até um ano de idade, quando começam a ingerir alimentos que contenham glúten ou seus derivados. A demora no diagnóstico leva a deficiências no desenvolvi...
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Resource added in:
16/05/2019
Available languages:
Portuguese
Celiac Disease, Glutens/adverse effects, Diet, Gluten-Free, Food Intolerance
Medidas simples podem evitar infecção hospitalar
Infecção hospitalar é aquela adquirida dentro do serviço de saúde, principalmente em enfermarias e UTIs e pode ser transmitida de um paciente para outro, assim como para os acompanhantes, se não...
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Resource added in:
16/05/2019
Available languages:
Portuguese
Cross Infection, Hand Disinfection, Infection Control
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